Took the tree down …

My son was home for Christmas.  I picked him up on the 23rd. We had a nice ride home and a great entry to the house. I took a sweet picture of him in front of the Christmas tree and promptly posted it on Facebook. Immediately it was “liked”.

Three hours later the boy was super high maintenance. Thomas is special needs so he’ll always be some sort of high maintenance in his general being. Whether it be attention to his meds or supervision while showering and brushing his teeth. That stuff doesn’t bother me. The super high maintenance person Thomas turned into on Dec 23rd, three hours after arriving home is a different animal. He refused any suggestion of entertaining him, refused to draw, color, watch a movie, watch tv, you name it.

Instead Thomas occupied himself by following me around and generally getting in my face wanting this or that, insisting  I wash his clothes every night, still refusing to do anything that would require independence.  This continued on through the 26th of December. So that means I spent my Christmas with this boy on my heels or in my face and him constantly needing “something”, anything you can think of. He was relentless and would not leave me alone.

So on the afternoon of the 26th fueled by caffiene and disappointment I took the tree down. I couldn’t wait to get the most obvious symbol of Christmas out of my house.

The nativity scene is still in place. That is what matters most during this season anyhow.



Happy New Year

The end to another year. Another Christmas flown by. I rarely reflect at the end of the year. But this year I will.

I think I had a good year. For the first time in a long time I started getting back to “me” again. Feeling like myself, laughing with my kids. I started a new to me antidepressant back in March of this year and that was the final catalyst to enable me to feel better. I no longer feel like the depression is right around the corner waiting to get a jump on me. I can laugh and joke around without feeling false. It’s nice.

We also had an awesome time on vacation this past summer. We rented a large vacation house with two other families (the first time we had ever done that) at the Outer Banks, North Carolina and it worked out really great. We all got along and everyone just chilled. I was able to hang out at the pool for 2 solid days straight. I haven’t hung out at a pool being that carefree since I was a teenager. It was sweet.

This fall flew by I feel; literally.  It seems as if school just started and here we are at the end of 2015, almost half way through the school year. Alyssa graduates high school this year and that blows my mind a bit. We discuss colleges and went to visit a few. She wants to stay in Manhattan and that’s cool. I can’t blame her, I love Manhattan. Daniella started high school this year and I’m happy for her. She had a less than great time at Junior high and really needed the change. She joined the swim team and really enjoyed it. She loved the camaraderie of the team and competing at the meets.   Definitely a year of change for the better for her.

And finally Christmas of 2015. It was a nice enough Christmas. Thomas was home and was quite high maintenance. It was overwhelming to be honest. The girls and Tommy had a great Christmas, my parents came here for dinner with my niece and nephews. We had an unbelievable dinner of rib roast and lasagna. It was Tommy’s idea to have the rib roast and he totally hit the nail on the head.

The day after Christmas I took the tree down. It was drying out and needles were flying off everywhere. Besides as far as I was concerned Christmas was over. I still have the nativity out and that’s all that really matters anyway.

I’m looking forward to 2016 with hope. I’m due to be starting a bible study in January for Mom’s of special needs children and I’m really looking forward to it. I hope I’m a blessing to others and that the Lord uses me as he sees fit. More of Him and less of me.

So I wish everyone reading this a very, very Happy New Year!


Looking Back

I’ve been doing this bible study specifically for moms of special needs children (the name of the book is a Unlocking the Treasure by Bev Roozeboom  ). It’s really got me digging deep in my faith which I guess is what it’s supposed to do.  It also asks a lot of questions some meant to be shared wth a group, others not to be shared. And I tell you a lot of what this woman writes really brings me back. Back to when Thomas was very young and many things were new. Like the first time I ever heard the word “retarded” pertaining to my son who was 3 yrs old at the time. The doctor who told me was so very cold and blunt. No bedside manner at all.  I refused to accept it and insisted this cold hearted man write an addendum in his report of how much I vehemently disagreed with him. I knew there was something wrong with Thomas but to tell me he was mentally retarded told me nothing but an IQ score. It didn’t tell me why he hit all the time and threw terrible tantrums or why was speech impaired.

In the bible study Unlocking the Treasure the author asks if anyone showed you compassion when you realized your child was special needs. The day I was told l that my son was “retarded” one of my husbands best friends brought me flowers and took me to a movie; a comedy.  When I look back it was exactly what I needed at that time and an act  full of compassion.

This study is also full of how much The Lord loves us. It’s mind blowing and humbling all at the same time. That the God of our universe loves us and wants us to seek him…I think of how much I love my children, how much I love Thomas after all he’s put me through.  God loves me more than that. It’s hard to grasp His love for us and wrap my brain around it.


A New Small Group in town…

So the Christmas tree is up and shopping is underway.  I’ve gotten more shopping done than I usually do at this time of year and I’m glad to be a little ahead of schedule. I’m due to start a bible study/small group for mothers of children with special needs with another mom in January. I’ve already identified a book; a bible study for Mom’s of special needs children; I think would be a good fit. I still have to finish it myself so I’m not entirely sure yet. Plus I don’t have input from my co-leader yet. In due time I’m sure it will all fall into place. Or rather in the Lord’s time it will fall into place.

I’m excited to about to be a small group co-leader. To be able to share my experience of raising Thomas and how God has been there through the good the bad and the ugly. Yes God was there when times were horrible as well as when times were good. And it was only through His strength did I gain strength. I was even angry at God on more than one occasion.  I know He was still there and never left us. I know that’s why I was so angry. To know God was there and things were still so crappy. I only got over the anger when I actually met the Lord. And it was then that I really knew in my soul that He was there did my anger dissipate.

I’m excited to have fellowship with other Moms and talk about the Gospel. And how Jesus is still working miracles in our lives and will continue to always be there working and interceding for us. I know I sound optimistic. I am optimistic. We have a wonderful mentor in place who will be there for us in person and in prayer. That makes me feel more secure and confidant in this new role.  I have this month to prepare and pray and prepare some more and then of course pray even more. I’m honored to be used by God in this way. To God be the glory.