Still waiting on the group home…

I’m told things are “In the hands of the state ” which is mildly amusing. The same hands of the state who were pressuring me to take a placement in Brooklyn this past spring. The same hands told me “things could take a while” when I questioned them why they were moving so fast when Thomas was only 20 years old and still had a year to go of education from the New York State Bd of special education. I now know why they were pressuring me to take the placement at that time. It seems “The State” moves rather slowly.

Don’t get me wrong I’m not looking to move Thomas any quicker than he has to be moved. He’s in a great place getting great care and in a wonderful school with an awesome teacher. The staff all love him. I’m just curious as to when this transition will take place. Will it be a month from now? Two months? Six months?

The other thing that is almost amusing is that my contact from the state, the coordinator who pressured me to take the Brooklyn placement who called me on a regular basis has been silent. My phone has not rung from him in months since it’s been decided that Thomas would be placed here in our borough. I called him yesterday and left a voice mail asking him what if anything was going on. Since it was a Friday I didn’t expect a phone call back. We’ll see if I receive a return call come Monday. If not I’ll simply have to call again.

I’ve also come to the realization that even though I say Thomas’ future is in the hands of the “State”, it’s really in the hands of our Lord. God has the ultimate control over when and where Thomas goes. I’ve submitted my control of this to the Lord and it feels right to acknowledge that he’s had the reigns the whole time anyway. There have been no coincidences in the actions that have taken place to secure Thomas’ placement in this group home. Every action was planned by our God and carried out by Him. It all seems so perfect and as if the universe came together at just the right time… it did just as God planned it to be.

Thats merely a blessing that I can see and talk about now.  There are so many other blessings we know nothing about that are just as carefully planned and executed so perfectly with the perfect outcome. Praise God! His works aren’t always so obvious or in plain sight. Many times we see His works years after. His blessings in disguise.

Praise him.

 

What I Need

I was driving and listening to one of the Christian radio stations we have here and the dj played an intro to a song. The intro was from one of the artists who’s song was about needing Jesus. And it hit me. I need Him. I really do. I was thinking of all the times in my life I thought I could do it on my own or thought I was doing things in my own strength and how very wrong I was/am.

I started thinking of how many times I didn’t thank God for his goodness and mercy. I repented for transgressions that happened a long time ago. He knows. I’m sitting here at the ferry terminal waiting to go to work and I realize He is here. Right here in this building full of people waiting to get to work, school, tourists… Our Lord and Savior is alive and well and He is with us wherever we go even in times or trial, especially in times of trial. I never before thought of The Lord as being so… so tangible. His love is amazing and all anyone has to do to receive it is accept Him as your Savior; the Lord of your life.

I also thought of The Gospel. The truth that God sent his only son who lived a sinless life to die a horrible death for us all of us. It’s so very humbling and unreal and so very real at the same time.  The Gospel is indeed good news!

I thought of all this while driving home from bringing my daughter to my Mom’s for a sleepover. It’s amazing how God will meet you where you are when you’re least expecting it. He meets you where you are… You don’t need to be “perfect” or cleaned up or have your act together to meet Him. The Lord takes you as you are and loves you as you are.

By the Grace of God

John 9: 2-7

And his disciples asked him, “Rabbi, who sinned, this man or his parents, that he was born blind?” Jesus answered, “It was not that this man sinned, or his parents, but that the works of God might be displayed in him. We must work the works of him who sent me while it is day; night is coming, when no one can work. As long as I am in the world, I am the light of the world.” Having said these things, he spat on the ground and made mud with the saliva. Then he anointed the man’s eyes with the mud …

When my son was younger I often thought I was being punished by God because of the way Thomas was. The horrible tantrums, aggression towards me, the multiple doctors, MRI’s, not being believed by specialists, having a pediatrician who was less than helpful…it was not a good scene. However, I was blessed with a supportive husband, parents and friends. And I can’t forget my wonderfully typical Alyssa who was so young at the time. Nonetheless I though I did something  to anger God and that’s why Thomas was the way he was.

Since then I’ve definitely changed my mind, I was not punished by God. Thomas, we later learned was brain damaged and it wasn’t my fault. I’ve also seen God work to His glory through my son. I’ve seen a change in me, Thomas absolutely changed me and the way I see others parent their children. He’s made me less judgemental.

I’ve seen God’s glory and mercy when Thomas was placed in the top residential school why he was just 8 years old. He was under the care of wonderful professionals who were more than happy to communicate with us. That placement in that school was definitely orchestrated by The Lord.

Thomas’ placement in his current school has God’s fingerprints all over it. The school, the staff and their timing are a true example of professionalism and caring all rolled in one. I never had to worry about Thomas’ safety or whether they were following his IEP.

Now as we wait for Thomas to finalize being transferred to the group home I have no one by The Lord to thank. Again and again He’s showed how His timing is perfect. His way is right and just. His glory has shown so brightly through my son. There is no other way to describe the works I’ve seen. There are no coincidences that work out so perfectly and wonderfully. His will be done.

 

 

Surrendering

I’ve been thinking a lot about surrendering to God. Giving over to him my worries and anxieties. It’s wonderful in theory but difficult in real life. I correct myself, it’s sometimes difficult in real life. I had no problem handing over Thomas’ situation with the group home. Handing that over to The Lord was a relief. I no longer fretted over whether or not he would get in to that particular group home; my view was that if he did not get in then it wasn’t in God’s plan for Thomas and there would be another group home on the horizon.

I’ve recently handed over my new job search to The Lord. I know I’m exactly where I’m supposed to be right now. If another job does not present itself well then I guess I’m supposed to stay where I am for a little longer. And that’s okay. I do like where I am and enjoy what I’m doing for the most part. More hours would be nice… So we shall see.

I do have one area of my life that I have a difficult time surrendering to God. It’s part of my duties/job description as a nurse at my job. I keep praying about it and I do surrender but then I take it back. Pretty typical. My friend Louise would say, “We put it on the table and then we take it back…” I want to be able to lay my anxieties on the table to The Lord and leave them there and not look back. I know it’s possible I’ve done it before. Surrendering and submission are the hardest things to do. But they are the best actions to take before God. To acknowledge that He is in charge, He holds all the cards and He is above all. I remind myself over and over that His ways are higher than ours and He does indeed have a plan.

I’ll keep praying and surrendering and worshiping the one true God. There is none higher and I’m honored to serve him.

 

Worship night

Last night I had the privilege of seeing Worship Night in America presented by Chris Tomlin at Madison Square Garden in NYC. Oh. My. Gosh. It was amazing. Truly amazing. I get goose bumps talking about it and reliving it all over again. All the artist he had lined up were so, so talented and so very dedicated to serving our great God. The special guests were Louie Giglio who preached a very moving session on traveling “the 20 inches” between our knees and the floor to pray for our nation. This man had all of Madison Square Garden on our knees and praying, very moving and oh so powerful. Max Lucado was another speaker he was so wonderful reinforcing how much we are loved by our God that we should let Him love us; we can call our Heavenly Father just that “Father, Abba, Papa” because He loves us so.

The musical artists were, Matt Redman, Matt Maher, Phil Wickham, Kim Walker-Smith (whose voice was incredible with all the jumping and dancing she did and never once faltered), Bryan and Katie Torwalk, Stephen Curtis Chapman, Tasha Cobbs and the very talented DJ Promote. When Tasha Cobbs took the stage to sing “There is Power in the Name of Jesus” she had the whole Garden mesmerized and singing and worshiping with her, I wish I could describe the feelings she provoked in her performance. The only thing I can do is link her performance of the song https://www.youtube.com/watch?v=-pD2zIuiC2g  She sings from her soul.

Chris Tomlin performed his hit “Good Good Father” https://www.youtube.com/watch?v=CqybaIesbuA. He had everyone singing and worshiping. Honestly all the performers had us worshiping the one true God, our Lord and Savior Jesus Christ. I haven’t been this moved at a concert since I can’t tell you when. I felt filled with the love of Christ, something I feel is desperately needed in our country. To feel that love and to know it is finished, we’ve been ransomed and paid for by the blood of our beloved Savior.Another song was “How Great is Our God” also by Chris Tomlin https://www.youtube.com/watch?v=KBD18rsVJHk. Matt Redman did not dissapoint with “10,000 Reasons” https://www.youtube.com/watch?v=XtwIT8JjddM

I can’t recall every song that was sung last night but they all prompted you to jump up from your seat, raise your hands in worship and surrender your heart to our great God. f anyone reading this has the chance to see this awesome concert I urge you to go and be prepared to be moved by the power of God, our Lord and Savior Jesus Christ.

Church and a Bible Study

I haven’t been to church in about 4 weeks. And I won’t be able to attend my church this Sunday due to a family obligation. I miss my church. I miss hearing the preaching of the Gospel. It’s funny because years ago I never gave it a second thought that I didn’t go to church. I used to look at people sideways who made church a priority in their lives. Now I am one of “those” people.

I’ve been enjoying the small group I’m co-leading. Although I have to admit the way the bible study book we’ve been using  “Unlocking the Treasure: A Bible Study for Moms Entrusted With Special Needs Children” by Bev Rooseboom, sometimes brings me back to a time in my life with Thomas that wasn’t all that rosy. When I was looked at like there was something wrong with me and not him. Not that I wanted anything wrong with Thomas I just wanted someone to see what I saw and get him and us the help we so desperately needed.  The book also makes me realize just how loved I am by God and how awesome that love is.

The women in the group have truly blessed me with their presence and experiences. We have one woman who attends accompanied by her neighbor. The neighbor is an active member of my church. She doesn’t have a special needs child but her perspective of the Lord and surrendering to Him and trusting Him is something that I thoroughly enjoy.  We are blessed to have her attend the study even though she doesn’t have experience with special needs children, she has valuable experience walking with the Lord and we’re fortunate that she loves to share that part of her life with us and she does so with such joy that it’s infectious. Everyone should have a “Jan” in their life or at least in their bible study group.

Missing church makes me realize how grounded I feel when I’m there. How I’m reminded of what my Savior has done for me and every sinner in the world. How good our God is, how perfect and just He is. How He is a part of every single moment in our lives. And there isn’t anything that happens, “good” or “bad” without His finger prints all over it. I remember when I was going though a bad time depression wise and a woman I consider my Mentor put her hand on my shoulder and said she sees God’s fingerprints all over me. I can’t tell you the comfort that statement gave me.  I wasn’t in control at that time but God was. He was there every step of the way even when I convinced myself he wasn’t. God is so good.

 

 

 

Waiting on the group home part 3 (I think)

Things are moving along albeit slowly but that’s okay. Slow and steady is fine for both Tommy and me. I’ve learned that an agency here had requested Thomas’ “packet” from his current school and it was quickly emailed off. I still have phone calls to make, Thomas is in need of a “Medicaid service coordinator” or MSC for short. This person will help greatly in setting up services for him when he comes to live in a group home. Thomas has  had MSC’s in the past when he lived at home. So we’re familiar with their role. Tommy and I are also meeting with the group home’s nurse and psychologist this week.  I’m looking forward to this meeting.

I have something amusing to write about. The person from the state who was previously pressuring me to accept group home placement in other boroughs *except* for the one we live on is now totally on board for Thomas to live here. On this borough. Really? The other day this person said to me, “You’ve been away from your son long enough, you need him to live near you now…” It was all I could do to not reply in a sarcastic manner but I knew I just couldn’t. Instead I exclaimed my agreement with them, “Oh yes, exactly!”

I’m so grateful to my church family for praying with us for the group home placement to happen. People I didn’t even realize were praying for us are doing so. The power of prayer is real and I’m honored with this wonderful group of people. It’s amazing how the Lord works, He is worthy to be praised!  When I look back at my  journey with Thomas it’s the times I know that God was with me that mean the most. He is always with me but the distinct times I know God was blatantly, no argument, hands down, definitely answering my prayers mean so much; how do you put it into words or explain it to someone? You can’t. You have to believe.

“Be still, and know that I am God. I will be exalted among the nations, I will be exalted in the earth!” (Psalm 46:10) is one of my favorite Bible verses. In looking up this verse I learned that “Be still” is to stop frantic activity, to cease and to look to the Lord for help.In this life I lead now,  I can see no other way to face a problem. Acknowledging that God is all knowing, everywhere and all powerful; trusting Him and His plan; that we understand who He is. When I am still and surrender to God I know I can find peace.

 

 

I used to think…

Before I had my son I used to think kids who weren’t talking were never read to or talked to by their care givers, I used to think people who yelled at their kids were monsters and didn’t deserve their kids. I used to think having a child in a special ed class was a terrible “label” and it would follow that child where ever he/she may go and not with good consequences.
I used to think having a son who was labeled mentally retarded was the worst thing ever. So much so that I badgered a developmental pediatrician who wrote that in an evaluation report to also add an addendum that I as the child’s mother vehemently disagreed with his findings.

I used to think a lot of things. Used to. Then life hit with an impact. I had a son who was speech impaired for seemingly no reason when he was a toddler. I tried to read to him as well as you could read to a busy and disinterested toddler. I am a “yeller” or I was anyway. And I know I’m in good company because a lot if not most of my mom friends were yellers too. My son started receiving special education services when he was 3 years old. I swallowed my pride and accepted their “label”, little did I know that such a label is not a bad thing but a ticket to other services he was entitled to such as Physical therapy and occupational therapy. Today I encourage any labels “they” want to put on my son as it doesn’t change who he is to me, because with those labels now comes placement beyond the board of education. My son’s time being educated and cared for by the board of ed is coming to an end as of next year when he turns 21. New labels may be more appropriate for him as an adult.

I used to think depression was a state of mind and that one should just snap out of it or look around at all they have that is good in their life. I now know depression is a real chemical imbalance in one’s brain and there is no “snapping out” of it. You simply can not. Depression clouds all your thinking and makes you feel worthless no matter what riches you possess whether it be a terrific family or terrific wealth.

I used to think God was a mystical father figure only interested in us on Sunday mornings. I used to think Jesus was the son of God who died upon a cross; period. I now know with all my being that God is real; period. He is with us all the time and not just on Sundays. And that Jesus died for my sins and yours. I know now that His grace is sufficient. Jesus’ life and death and resurrection is the best example of love that I know. And I humble myself to follow him the best that I can.

Life and looking back

I’ve been trying since this morning to write this post. I started a couple of times on my phone while on the ferry but for whatever reason my phone won’t “save” the post, so that was a waste of time. Then I tried again on the way home on the ferry, then on the bus. Again with my phone not saving anything. What the heck man!

So now I’m home with freshly dyed hair waiting for dinner to be ready. Here I am. I’ve been thinking about life these days and how I’m so glad to be a part of it. I have my relationship with the Lord, a great husband and a job I really like and lest I forget my 4 kids that always keep me on my toes. Especially Samantha these days. If it’s not one it’s another. But that’s okay.

I think back to this time last year. I wasn’t doing too well depression wise and it was at this time my doctor tried one other medication. He hit the nail on the head and I’ve been feeling well ever since. I don’t ever want to go back to where I was. Last week during bible study we were discussing times when we’ve felt abandoned by God. I know when I was in the depths of my depression I felt like God had just left me there to flounder. I know now this isn’t true, He’s never left me, He hadn’t moved, I had. The depression makes you feel isolated and worthless. I kept praying for God to guide my doctor, to guide his decisions that God being the Great Physician and Healer could certainly guide anyone here on earth. And He did. He’s been orchestrating my recovery all this time. I’ll never know why it took the time and med trials it did, or who knows someday I could know and everything will make perfect sense. Until then I’ll keep trusting the Lord and know that He never wastes a hurt.

Letting God In

I remember growing up and attending church. I felt church and God was just for Sunday. I couldn’t imagine applying my faith in God to other areas of my life like school, hanging out with my friends, etc… When I was older and went back to church I again couldn’t fathom letting God in to other parts of my life such as work, friendships, relationships, etc… I mean I believed in God and Jesus but they were “separate”. They were only for Sunday.

It’s only since I’ve been saved do I really understand letting God in to all areas of my life. The Lord has permeated every aspect of my life from my marriage, raising my children, friendships, discussions, my job, you name it; and I am so grateful to have Him there. Yesterday at church Pastor John said, “You are where you are because God has put you there.” I love that. Because it’s so true. I’ve wondered often if I’m working where I’m supposed to be. I’m working as a nurse piercing ears in Manhattan. It’s definitely where I wanted to be geographically but I never imagined myself working in this capacity. Never. I’m exactly where God wants me to be for whatever reason and it’s okay. I don’t believe it’s any coincidence that my supervisor just happens to be a Christian. There are no coincidences just things that happen as orchestrated by The Lord.

Having God be a part of every aspect of my life certainly changes the way I think and approach circumstances. I know it’s the Lord’s presence that gives me the calm, patient demeanor I have with my clients. I know it’s the Holy Spirit that gives me words when my kids have questions about God or our Savior Jesus Christ. I know it’s also the Holy Spirit working through me when co-leading my small group/bible study.

I would encourage everyone to simply let God in to all areas of your life. He’s already there you just need to acknowledge Him.