God

Snowed In

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Like most of the country on most of the East coast we’re snowed in. It’s not so bad the kid are older so there’s less fighting, note I said “less” fighting, not “no fighting”. Somehow a 14 year old will find a way to annoy the crap out of a 9 year old and vice versa. But all in all it’s been a quiet day.

I’ve been reflecting on my blog. When I started, my intent was to talk about being a personal shopper and write about all my wonderful thrift finds.  Well, I’m no longer a personal shopper, it didn’t take off as I’d hoped but that’s okay, God had other plans. My first entries are all about my thrift finds and trying to sell said finds. I wrote about my husband and then finally Thomas and and all we went through when he was a baby up to his life now.  In fact Thomas’ whole life story is here in this blog. (See July 2013 and scroll through, I don’t know how to link, sorry :))

I’m still thrifting. The thrift store is my happy place. No one bothers me there and it’s where I go to escape for a little while. I have my phone on me so it’s not like I’m unreachable.  I have a thrifting face as my daughter once told me. We were thrift shopping together and Alyssa stopped me to ask a question, I said, “What??” and she said, “Mom! You should see your face!” Some people have a resting bixch face, I have a thrift face.

I still write about Thomas, I’ll probably always write about him. I wouldn’t be who I am now if it weren’t for him. I had certain ideas and opinions of what it was like to be a mother as we all do *before* we have kids. Being Thomas’ mother humbled me in a way I still find difficult to describe. His many diagnosis’ opened up new worlds and new people into those worlds. People I never would have met and appreciated and loved had he not been special needs. If Thomas were born a typical child I would have grown to be a different person and I’m not so sure I would have liked her. This is not to say I wouldn’t give anything for Thomas to be typical. I just wouldn’t want to give up who I became as a result of him not being typical if that makes sense.

I still write about God and my Savior Jesus Christ. I absolutely wouldn’t be where I am without the Lord in my life. His love and direction keep me focused and have shaped me and brought me to spiritual places I’d never have reached without Him. My love of the Lord spills into my writing when I least expect it or intend it to. I guess that’s what happens when the Spirit takes over. My fingers start flying on the keyboard or on my phone and I can’t find the words fast enough to tell people how much God loves them. I wish for so many people I know to realize that God is real. Jesus died for them. And all they have to do is ask Jesus into their heart.

It’s still snowing.

 

 

 

Direction

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I’ve mentioned before that I have been praying for direction. I want The Lord to guide my steps and lead me. So far it’s produced a feeling of calmness. Not serenity but just calm because I know that He is in charge and I have faith in God.

I’ve also been praying for more hours at work. So far that prayer had been answered, praise God! My boss is opening her own office in Manhattan so she’ll no longer be leasing space from another doctor. I’m excited for her and for me 😀. The plan is to gradually increase the hours and/or days as long as there are customers. So I could potentially be looking at another day or two in the future and I’m totally okay with that. It really is an answered prayer. For years I prayed for the “right” job to come along and here I was presented with this one which was extremely part time only a few hours a week. When I would get discouraged my husband would be encouraging saying its ok you haven’t worked in a while this is good to get your feet wet. And he was right. I know I wasn’t ready to commit to more.  Now after praying about it; time has passed and things have changed and more hours have been offered. God is good.

On the bible study front things are moving along. I’ll be glad when arraignments are done and set in stone and we are ready to get started. This isn’t to rush anything I’m just eager to feel more settled and begin.

God is so good.

 

Church today

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Our new Pastor began preaching today. He was awesome! He’s from the South and just spoke the message loud and clear with bits of humor scattered here and there. I truly enjoyed hearing him preach.

Pastor John spoke with such a passion for the Gospel it was wonderful. He also spoke of our finding happiness and joy in things or places outside of Jesus. That nothing but Jesus will bring us joy. Such powerful true words. Lately I feel such peace when I pray that it can only be described as joy. Knowing I can talk to my God, my Savior and knowing that He loves me…How do you describe that feeling other that it is joy? How do you tell other people that that is how close they are to finding joy? To shut out the noise and be still and know that He is God.

Our Pastor also spoke of wrong thoughts we have. Such as, ” Suffering is avoided by a lot of faith; God is mad at you; we deserve or earn suffering to gain favor from God; and that suffering is not part of the good plan of God.” Pastor John also said our suffering is not always oppositional to the work of God. This hit home to me personally in regard to my battle with depression and the trauma of living with my son when he was aggressive towards me. I was did think God was mad at me and for the life of me I could not figure out how this was part of God’s plan, that someone (meaning God) has made a big mistake.

In the middle of a storm it’s so very difficult to imagine anything good arising from what you’re going through. I know I have to always remember that even when things are tough, God is with me. He has not forsaken me and never will and that God will be glorified.

I’m already looking forward to next Sunday.

Coming Together

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I had my meeting with the Pastors at church concerning the new small  group/bible study for Moms of special needs children. The meeting went well, I had to tell Thomas’ story to one pastor who wasn’t aware that I even have a special needs child. I gave him the extreme abridged version of the past 19 years of my life. With each breath I took I noticed the pastor’s eyes getting bigger and bigger. Thomas’ story is a lot to digest in one sitting. They asked me why I wanted to do this group. I answered that it’s something I’ve wanted to do for a while but I haven’t been in a place where I could do this. Now I am in that place and it feels good. If I can help anyone with my experience with Thomas I’ll experience the truth of the statement that “God doesn’t waste a hurt”. For years I’ve wondered when he’ll use what I’ve been through. Now seems to be the time and I’m so grateful to Him.

I reached out to a few moms tonight and have two solid “yes” answers. Tomorrow I approach  more moms. I swear it’s the Holy Spirit giving me the gift of being bold. I’m hoping one Mom’s childcare situation gets sorted out so she can attend.

I’m excited to see how God is working and will continue to work as I pray for direction; for Him to guide my steps.

 

 

Prayer and My Son

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Before Thomas went to residential school he used to attend church with us. There was even a class for special needs kids during the service, sort of a Sunday school type. That was awesome as Tommy and I could attend church worry free and I felt assured that he was getting some sort of lesson about the Gospel in a way he could understand. Back then I would often ask him if he knew that Jesus loved him and Thomas would answer, “Yes”.

This past Christmas when Thomas was home he told me that some of the staff pray with him and he kept saying “Jesus” over and over. I asked him if the particular staff members pray to Jesus with him and Thomas said yes. This really touched me because its a rare occurrence for Thomas to attend church with us anymore. If he’s home for the weekend Tommy takes him back early Sunday morning to avoid the traffic.

It makes my heart sing that the staff at his school will pray with him. Not only do they take care of his physical and emotional needs in a way that I could not they are also taking care of his spiritual needs. I still ask Thomas is he knows that Jesus loves him and he still answers yes. That makes me smile. My son with his limited capabilities knows our Lord loves him.

Before I was saved I used to worry that because Thomas is special needs and he wouldn’t be able to be confirmed and receive communion (in the Episcopal church I grew up in and used to attend you were confirmed and received  first communion at the same time at age 12).

I don’t doubt that my son is saved. I know our Lord and Savior love him and have placed staff members in his path that love the Lord and are willing to share that love.

 

Being Moved

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The new year has been ushered in and with it brought my father to the ER/hospital/admitted with pneumonia. It came on very suddenly. He was fine New Year’s day; by the next morning my mom was calling an ambulance and my dad was on his way to the hospital. So fast. He’s feeling much better today and is eagerly waiting to be discharged home.

I’ve always wondered what my dad thought of God and Jesus, did he believe? He’s the person that always came to my mind when our Pastor spoke about spreading the Gospel. The Lord has put it on my heart many times to talk to my Dad about Jesus but I pushed it aside. Today was different. I called my father at his hospital bed and told him I wanted to talk about his salvation and I wanted to be with him in heaven. Did he believe in Jesus?  To my relief my father said that Yes he believes he just doesn’t go to church and was actually spurned and turned off to church when he was younger. I mentioned perhaps he could go to church with my Mom when she goes. He seemed open to that suggestion.

I’m glad I had this conversation with my dad. It started out a little difficult but became easier the more we talked. I firmly believe the Holy Spirit was prompting me and I’m grateful for that. I know I would say to myself, “but I don’t know what to say or how to say it” referring to talking about God or Jesus to people other than my friends from church or my church family. My bible study leader always said to not worry, the Holy Spirit will guide you and she’s right; He will and has.

Happy New Year

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The end to another year. Another Christmas flown by. I rarely reflect at the end of the year. But this year I will.

I think I had a good year. For the first time in a long time I started getting back to “me” again. Feeling like myself, laughing with my kids. I started a new to me antidepressant back in March of this year and that was the final catalyst to enable me to feel better. I no longer feel like the depression is right around the corner waiting to get a jump on me. I can laugh and joke around without feeling false. It’s nice.

We also had an awesome time on vacation this past summer. We rented a large vacation house with two other families (the first time we had ever done that) at the Outer Banks, North Carolina and it worked out really great. We all got along and everyone just chilled. I was able to hang out at the pool for 2 solid days straight. I haven’t hung out at a pool being that carefree since I was a teenager. It was sweet.

This fall flew by I feel; literally.  It seems as if school just started and here we are at the end of 2015, almost half way through the school year. Alyssa graduates high school this year and that blows my mind a bit. We discuss colleges and went to visit a few. She wants to stay in Manhattan and that’s cool. I can’t blame her, I love Manhattan. Daniella started high school this year and I’m happy for her. She had a less than great time at Junior high and really needed the change. She joined the swim team and really enjoyed it. She loved the camaraderie of the team and competing at the meets.   Definitely a year of change for the better for her.

And finally Christmas of 2015. It was a nice enough Christmas. Thomas was home and was quite high maintenance. It was overwhelming to be honest. The girls and Tommy had a great Christmas, my parents came here for dinner with my niece and nephews. We had an unbelievable dinner of rib roast and lasagna. It was Tommy’s idea to have the rib roast and he totally hit the nail on the head.

The day after Christmas I took the tree down. It was drying out and needles were flying off everywhere. Besides as far as I was concerned Christmas was over. I still have the nativity out and that’s all that really matters anyway.

I’m looking forward to 2016 with hope. I’m due to be starting a bible study in January for Mom’s of special needs children and I’m really looking forward to it. I hope I’m a blessing to others and that the Lord uses me as he sees fit. More of Him and less of me.

So I wish everyone reading this a very, very Happy New Year!

 

Looking Back

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I’ve been doing this bible study specifically for moms of special needs children (the name of the book is a Unlocking the Treasure by Bev Roozeboom  ). It’s really got me digging deep in my faith which I guess is what it’s supposed to do.  It also asks a lot of questions some meant to be shared wth a group, others not to be shared. And I tell you a lot of what this woman writes really brings me back. Back to when Thomas was very young and many things were new. Like the first time I ever heard the word “retarded” pertaining to my son who was 3 yrs old at the time. The doctor who told me was so very cold and blunt. No bedside manner at all.  I refused to accept it and insisted this cold hearted man write an addendum in his report of how much I vehemently disagreed with him. I knew there was something wrong with Thomas but to tell me he was mentally retarded told me nothing but an IQ score. It didn’t tell me why he hit all the time and threw terrible tantrums or why was speech impaired.

In the bible study Unlocking the Treasure the author asks if anyone showed you compassion when you realized your child was special needs. The day I was told l that my son was “retarded” one of my husbands best friends brought me flowers and took me to a movie; a comedy.  When I look back it was exactly what I needed at that time and an act  full of compassion.

This study is also full of how much The Lord loves us. It’s mind blowing and humbling all at the same time. That the God of our universe loves us and wants us to seek him…I think of how much I love my children, how much I love Thomas after all he’s put me through.  God loves me more than that. It’s hard to grasp His love for us and wrap my brain around it.

 

A New Small Group in town…

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So the Christmas tree is up and shopping is underway.  I’ve gotten more shopping done than I usually do at this time of year and I’m glad to be a little ahead of schedule. I’m due to start a bible study/small group for mothers of children with special needs with another mom in January. I’ve already identified a book; a bible study for Mom’s of special needs children; I think would be a good fit. I still have to finish it myself so I’m not entirely sure yet. Plus I don’t have input from my co-leader yet. In due time I’m sure it will all fall into place. Or rather in the Lord’s time it will fall into place.

I’m excited to about to be a small group co-leader. To be able to share my experience of raising Thomas and how God has been there through the good the bad and the ugly. Yes God was there when times were horrible as well as when times were good. And it was only through His strength did I gain strength. I was even angry at God on more than one occasion.  I know He was still there and never left us. I know that’s why I was so angry. To know God was there and things were still so crappy. I only got over the anger when I actually met the Lord. And it was then that I really knew in my soul that He was there did my anger dissipate.

I’m excited to have fellowship with other Moms and talk about the Gospel. And how Jesus is still working miracles in our lives and will continue to always be there working and interceding for us. I know I sound optimistic. I am optimistic. We have a wonderful mentor in place who will be there for us in person and in prayer. That makes me feel more secure and confidant in this new role.  I have this month to prepare and pray and prepare some more and then of course pray even more. I’m honored to be used by God in this way. To God be the glory.

 

 

 

Special Needs and Grace

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I reread a book recently that I had read a few years ago. The name of the book is “Wrestling With an Angel” by Greg Lucas. It’s written by a father who’s son is special needs/disabled and how God’s grace is shown to him through his son, Jake. The book touched me in a profound way. And through it I’ve recognized God’s grace in my own special needs child.

Greg Lucas’ examples taught me to see God’s grace where you least expect it. There is one instance where Greg is giving his son a bath and for a few minutes his son completely relaxes in the water with his eyes closed, no anxiety or stress and he’s given a glimpse of what his son would look like if he were a typical young man. That is grace, a gift from God. I’ve had a similar experience with Thomas. I had a dream that Alyssa and Thomas and I were talking together in the front sun porch of our house. Thomas was a completely “normal” or typical teenager. I woke up from that dream feeling odd and I wasn’t sure how to process it. I remembered what I had read in “Wrestling With an Angel” and  I realized the dream was a gift. That one day when we’re all in heaven together Thomas will speak to me as a typical child, one with no disabilities such as speech impairment or mental retardation.  He’ll be able to tell me everything he isn’t able to tell me on a regular day.

Greg Lucas also tells of his testimony of being led to the Lord by his son. Jake was 2 years old and suffered from terrible, constant seizures. One evening Greg completely surrenders to the Lord. He cried out to God and begged Him to take over, not just Jake’s illness but his entire life. That touched me because my son led me to the Lord.

When I returned to church and was saved, when I gave my life to Jesus; my life was “fine”. Thomas was living home and doing well. We had many supports in place and Thomas had recreation programs that he thoroughly enjoyed. The girls were also doing well. I met the Lord however because of my son. Thomas was in and out of the psychiatric hospital. I was so angry with God. Why? Why? I would ask and I didn’t receive an answer that was suitable. It was only when a friend (thank you Toni!) suggested I listen to “Praise You In This Storm” by Casting Crowns did I finally break down and realize Jesus was for me not against me. That He did indeed hold every tear I cried. It was at that moment God showed me His grace and my anger dissipated.

There are many more ways that God has shown Himself to me through my son. People who have come into my life who otherwise would not. Situations that would never have come about if not for the Lord. And I owe Greg Lucas’ book for showing me how God’s grace is manifested in my son.